Wednesday, May 25, 2011

May is Ehlers-Danlos Syndrome Awareness Month

Unfortunately, the camera my friend loaned me doesn't seem to work with my SD media card, so, until I get a new camera, my lipstick swatches will have to wait a bit.

In the meantime, I'd thought I'd do a post on May being Ehlers-Danlos Syndrome Awareness Month. EDS is a group of genetic & congenital connective tissue disorders that is woefully under-diagnosed. Many people, especially adolescent boys, are not diagnosed with Vascular type EDS until autopsy following a stroke or spontaneous aneurysm.

This is the best video on EDS Awareness I have seen yet:


A Medical Zebra is someone with a rare, or under-diagnosed condition, and comes from the saying, "If you hear hoof-beats in Central Park, think horses, not zebras."

ETA: If you think you might have EDS, check out www.ednf.org for more info on types, symptoms, genetic testing & lists of specialists. 
ETA again just to make sure that British YouTuber, got proper credit for her phenomenal EDS video.

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